Rachel has signed a cross-party letter urging the Prime Minister to act to end the wait for thousands of people living with cystic fibrosis who need access to life-saving drugs.
It’s now been one year since Theresa May said she wanted a “speedy resolution” in the ongoing negotiations between NHS England, NICE and drug manufacturer Vertex so that cystic fibrosis patients could have access to Orkambi.
To mark the anniversary, the charity, Cystic Fibrosis Trust, delivered a cross-party letter, signed by Rachel, inviting Theresa May to attend a Parliamentary Debate on June 10th on the issue.
The letter asks for the Prime Minister to give an update to MPs on what must happen to bring an end to the ongoing negotiations and give cystic fibrosis patients access to these lifesaving precision medicine drugs – Orkambi and Symkevi.
Rachel said: “I am backing the Cystic Fibrosis Trusts campaign which calls for access to lifesaving drugs for those with Cystic Fibrosis.
“I have signed a cross-party letter to the Prime Minister which calls on Theresa May to act and end the wait for thousands living with this life-threatening condition. We need to see these drugs made available now.
Rachel has previously raised the case of one of her constituents, who wants to see more Cystic Fibrosis sufferers benefit from life-changing drugs, with the Health and Social Care Secretary.
Nicco Andrews, from Redditch, was born with Cystic Fibrosis and was fortunate enough to be selected to take part in the Orkambi drug trial.
At Rachel’s surgery, Nicco spoke to her about the positive impact the drug was having on his health and his life. He then called for more sufferers to have access to this life-changing drug.
“By signing this cross-party letter I’m continuing to support Nicco’s calls and the promise I made to him that I would do everything I can to put pressure on the Government to ensure more sufferers have access to these lifechanging drugs,” Rachel added.